I gotta interrupt our C-SPANlike book tour coverage for some news. Remember a few weeks ago, when I wrote you about a little girl in Nashville who was really sick? She was undiagnosed, having just a hell of a time, getting worse every day. It was a dire situation, every parent’s fear.
The family started an online journal about their experiences. I hadn’t known about the web sites that some families keep when a family member is ill, so despite my love of online journals, it was a new experience for me. Excruciating. It’s one thing to blog about knitting; writing about a sick child is something else. But there’s an efficiency to posting news, saving the family the endless repeating of details they don’t want to think about again. And for this family, it was clearly a therapeutic thing to do. They’re wonderful writers. It was a chronicle of a family turned topsy turvy, where each day was a leaky canoe ride down a new creepy tributary of medicine, where it was not clear how the day would go for this little girl.
This week, about four weeks after their first doctor visit, there came a diagnosis. They figured it out. They know what the problem is, a rare condition which has only around 100 documented cases in the medical literature. It is amazing, and thrilling, and the sort of gift that doesn’t come often. I think of this girl’s parents, who sensed something was wrong early enough that they dropped everything to figure out the problem. Their instincts led them to go full out, and it worked.
They have decided to stop writing the blog, so they can focus on returning to “normal” life, which they don’t really see as normal anymore.
Never have I been so thrilled to see a blog come to an end. Happy Easter, everyone.